Spark® Therapeutics, Spark Generation Patient Services℠, and you
At Spark Therapeutics, we challenge the inevitability of genetic disease. We are committed to delivering patient services that are as innovative and insightful as our cutting-edge gene therapy. Spark Therapeutics Generation Patient Services℠ partners with patients, responding to their specific needs, to instill confidence that the support provided is as novel as the treatment received.
You will have a knowledgeable and caring team
The Spark Therapeutics Generation Patient Services℠ team is made up of Patient Access Specialists (PASs) and Patient Access Liaisons (PALs). Every patient who enrolls in the program will have the support of a dedicated PAS and PAL.
We can help by:
- Providing a caring support team from confirmed diagnosis through postsurgery
- Ensuring a single point of contact to help you navigate insurance coverage and connect you with financial assistance resources as needed
- Helping to coordinate your visits to the treatment center
- Answering any nonmedical questions you may have along the way
Meet the Patient Access Liaison (PAL) team
Your dedicated PAL works outside the Spark Therapeutics office and is a good source of in-person support when you need it. Your PAL can help you understand your insurance coverage throughout your treatment journey.
I have a lot of experience working with patients. It’s a career that always finds new ways to be rewarding, sometimes in unexpected ways. A few years ago, in my last role, my colleagues and I received handwritten letters from patients and caregivers thanking us for the work we did. Many stated that the support we provided had a meaningful impact on their lives. To see tangible proof that our work directly improves peoples’ lives is incredibly gratifying.See More
When I joined Spark Therapeutics, I was immediately impressed by the company’s commitment to patients. Not only is its science groundbreaking, so is its approach to delivering that science to patients. My colleagues are constantly asking, “How can we do it better?” That dedication to putting patients first, combined with the willingness to explore, is exciting and inspires me every day.
Outside of work, I have a real passion for both art and nature. When I’m not perusing local galleries or modern art museums, I’m hitting the picturesque trails of the American outdoors. I have a particular soft spot for destinations out west. Some of my favorites include the Cascades, the Pacific Crest Trail, and the area around Lake Tahoe.
Learning patients’ life stories is a big part of what motivates me. Their stories are much more than just how they live with a genetic disease. Their stories are about their inspirations and aspirations, their relationships with friends and family, and who they are mentally and spiritually. Learning about their lives gives me a deep sense of connection. I do whatever I can for them to alleviate stress, confusion, or concern. One of the greatest joys in my job is working together with patients to overcome obstacles.See More
What inspired me to work at Spark Therapeutics was the scientists who developed gene therapy. They spend their time discovering ways for patients to overcome the challenges of their diseases. It's been so exciting to see how the science, research and dedication all come together to help my patients—it's what drives me.
When it comes to my hobbies, I love anything water related. I enjoy boating, jet skiing, paddle boarding, and going to the beach. My personal life revolves around my family and adorable goldendoodle. Whether it’s enjoying a glass of wine with my husband, or watching my children play sports, I love spending time with them. On the rare occasions that I have time to myself, I really enjoy reading mystery novels.
I have been fortunate to work in several different aspects of the healthcare industry. Although I enjoyed every role, I wanted to engage with patients and better understand their perspectives. Working closely with patients and being a part of their journey is a dream come true for me.See More
People living with inherited diseases do not have many options. Because of that reality, Spark champions research that could forever change and advance the field of gene therapy. It is very inspiring to work for a company that pursues rare disease indications. Having the chance to participate in potentially life-changing patient experiences is beyond amazing. My role is to provide support that can create a path all the way through the treatment journey.
My desire to help others extends to my personal life as well. I went to Houston after Hurricane Harvey to assist in rescuing animals and helping people affected by the storm. In addition, I regularly volunteer at animal rescue centers near my home. When possible, I like to travel internationally to learn about other cultures. I have made incredible friends and shared amazing experiences by meeting people from all over the world.
In the past, I spent many years working in neonatal intensive care units offering education on the effects of respiratory syncytial virus in children. I enjoyed educating hospital staff, but what mattered most was being able to help improve those tiny lives even if in a small way. This is where I learned the effect I could have on a patient’s life.See More
What drew me to Spark Therapeutics was its mission to innovate. To be part of creating the future is truly amazing. That innovation is done with patients in mind. We are using novel approaches in everything we do, from science to payer relations, and even how we support and interact with patients.
I’m very family focused. Much of my time outside of work is spent with my wife, son, and our 3 big dogs. We are an outdoorsy family that stays active by hiking, running, and kayaking.